𝐖𝐨𝐫𝐤𝐬𝐡𝐨𝐩: 𝐄𝐱𝐩𝐥𝐨𝐫𝐢𝐧𝐠 𝐔𝐬𝐞𝐫 𝐍𝐞𝐞𝐝𝐬 𝐟𝐨𝐫 𝐃𝐞𝐜𝐞𝐧𝐭𝐫𝐚𝐥𝐢𝐬𝐞𝐝 𝐃𝐢𝐠𝐢𝐭𝐚𝐥 𝐓𝐰𝐢𝐧 𝐄𝐧𝐯𝐢𝐫𝐨𝐧𝐦𝐞𝐧𝐭: 𝐃𝐚𝐭𝐚 𝐑𝐞𝐪𝐮𝐞𝐬𝐭 𝐚𝐧𝐝 𝐀𝐜𝐜𝐞𝐬𝐬 𝐒𝐜𝐞𝐧𝐚𝐫𝐢𝐨𝐬

To ensure that the future Decentralised Digital Twin Environment (DDTE) reflects the needs and expectations of its users, the DTRIP4H consortium is organising a series of online co-creation workshops bringing together stakeholders from across healthcare, research, policy, technology, and society. These workshops will gather insights on user requirements, governance, ethics, and operational considerations that will shape the development of a trustworthy and responsible digital twin ecosystem.

In our second session (April 23), we focused on Data Request and Access Scenarios, diving into how access is managed, where challenges arise, and what users really need.

𝐖𝐨𝐫𝐤𝐬𝐡𝐨𝐩 𝐃𝐞𝐭𝐚𝐢𝐥𝐬
Date: Thursday, 26 March 2026
Time: 10:00–11:30 CET
Format: Online

𝐖𝐨𝐫𝐤𝐬𝐡𝐨𝐩 𝐑𝐞𝐜𝐨𝐫𝐝𝐢𝐧𝐠
https://www.youtube.com/watch?v=DARX1HhaEfU

𝐌𝐚𝐢𝐧 𝐏𝐚𝐧𝐞𝐥𝐢𝐬𝐭𝐬
𝘔𝘳. 𝘑𝘢𝘯𝘢𝘬𝘪 𝘙𝘢𝘮𝘢𝘯 𝘙, 𝘗𝘩.𝘋.: presents the European Virtual Human Twins initiative. He leads policy, regulatory science, and stakeholder engagement at VPH – The Society for In Silico Medicine, with a focus on transforming data into actionable knowledge through advanced computational models and the application of digital twins in healthcare. His recent work includes contributions to the EU Health Policy Thematic Network on the adoption of AI and Virtual Human Twins, building on the European roadmap for Digital Twins. He holds a Ph.D. from KU Leuven and an M.S. from RWTH Aachen in computer vision and biomedical engineering, and his academic research includes work on animal models of neurodegeneration.

𝘋𝘳. 𝘈𝘮𝘢𝘳𝘺𝘭𝘭𝘪𝘴 𝘙𝘢𝘰𝘶𝘻𝘢𝘪𝘰𝘶: contributed her expertise to the discussion on digital twins and advanced research infrastructures. She is an Electrical and Computer Engineer and served as a Scientific Associate at the Athena Research Center, where her work focused on Research Infrastructures, Digital Twins, and Emotion AI, with extensive experience in European and national R&D projects. She led the technical team of the EBRAINS Research Infrastructure and played a key role in its integration with the Virtual Brain Twin project, supporting the development of advanced digital neuroscience platforms. She has also contributed to major European initiatives, including the EDITH CSA and the Human Brain Project, advancing innovation in digital platforms for neuroscience research.

𝘋𝘳. 𝘑𝘦𝘯𝘴 𝘋𝘪𝘦𝘳𝘬𝘦𝘴: contributed his expertise to the workshop discussion. He is Deputy Head of Research and Publication Support at the Cologne University and City Library, University of Cologne, where he has led initiatives in information science and research data management. Since 2014, he has been involved in developing RDM infrastructure, training, and open science practices, and has served as a Co-Principal Investigator in NFDI4Health. He is also active in national and European research networks, promoting FAIR data practices through training, publications, and policy engagement.

This session introduces the DTRIP4H project and the Decentralised Digital Twin Environment (DDTE) that the project aims to create. It also offers a unique opportunity to contribute to the development of a unified approach to data sharing, ensuring that your RI’s operational and policy perspectives are represented. By participating, you can help shape solutions that align with your infrastructure’s needs and priorities, while also gaining insights into best practices from other RIs.

𝐊𝐞𝐲 𝐓𝐚𝐤𝐞𝐚𝐰𝐚𝐲𝐬:
- Discovery Before Access: Ensure datasets, models, and assets are visible and understandable before enabling standardized access.
- Federated Yet Unified: A federated backend can support a seamless, unified user experience.
- Centralize vs. Federate: Centralize standards and core processes; federate innovation and local autonomy.
- Sensitive Data First: Prioritize distributed analysis and secure environments over data transfers.
- Metadata Matters: Use domain-specific yet interoperable metadata (e.g., OpenMINDS).
- Operational Governance: Governance must be actively implemented through roles, processes, and oversight - not just defined.
- Data Stewards: Essential for adoption and ongoing operation.
- Sustainability by Design: Plan early for integration with public infrastructure, national nodes, and industry.

This workshop is the second of a series of stakeholder-focused co-creation sessions designed to ensure that the DDTE for health is developed in alignment with real-world stakeholder expectations, operational needs, and governance requirements. The upcoming final session is foreseen on May 21st. Please find full information here:
https://www.dtrip4h.eu/news/dtrip4h-launches-workshop-series-to-explore-user-needs-for-a-ddte

Organised by: EHMA – European Health Management Association (Belgium) and the whole DTRIP4H consortium.

In the framework of: DTRIP4H project (www.dtrip4h.eu)

𝘍𝘶𝘯𝘥𝘦𝘥 𝘣𝘺 𝘵𝘩𝘦 𝘌𝘶𝘳𝘰𝘱𝘦𝘢𝘯 𝘜𝘯𝘪𝘰𝘯 (𝘋𝘛𝘙𝘐𝘗4𝘏, 𝘕𝘰. 101188432). 𝘝𝘪𝘦𝘸𝘴 𝘢𝘯𝘥 𝘰𝘱𝘪𝘯𝘪𝘰𝘯𝘴 𝘦𝘹𝘱𝘳𝘦𝘴𝘴𝘦𝘥 𝘢𝘳𝘦 𝘩𝘰𝘸𝘦𝘷𝘦𝘳 𝘵𝘩𝘰𝘴𝘦 𝘰𝘧 𝘵𝘩𝘦 𝘢𝘶𝘵𝘩𝘰𝘳(𝘴) 𝘰𝘯𝘭𝘺 𝘢𝘯𝘥 𝘥𝘰 𝘯𝘰𝘵 𝘯𝘦𝘤𝘦𝘴𝘴𝘢𝘳𝘪𝘭𝘺 𝘳𝘦𝘧𝘭𝘦𝘤𝘵 𝘵𝘩𝘰𝘴𝘦 𝘰𝘧 𝘵𝘩𝘦 𝘌𝘶𝘳𝘰𝘱𝘦𝘢𝘯 𝘜𝘯𝘪𝘰𝘯 𝘰𝘳 𝘵𝘩𝘦 𝘌𝘶𝘳𝘰𝘱𝘦𝘢𝘯 𝘙𝘦𝘴𝘦𝘢𝘳𝘤𝘩 𝘌𝘹𝘦𝘤𝘶𝘵𝘪𝘷𝘦 𝘈𝘨𝘦𝘯𝘤𝘺 (𝘙𝘌𝘈). 𝘕𝘦𝘪𝘵𝘩𝘦𝘳 𝘵𝘩𝘦 𝘌𝘶𝘳𝘰𝘱𝘦𝘢𝘯 𝘜𝘯𝘪𝘰𝘯 𝘯𝘰𝘳 𝘵𝘩𝘦 𝘨𝘳𝘢𝘯𝘵𝘪𝘯𝘨 𝘢𝘶𝘵𝘩𝘰𝘳𝘪𝘵𝘺 𝘤𝘢𝘯 𝘣𝘦 𝘩𝘦𝘭𝘥 𝘳𝘦𝘴𝘱𝘰𝘯𝘴𝘪𝘣𝘭𝘦 𝘧𝘰𝘳 𝘵𝘩𝘦𝘮.